I am 55, never had any health problems, just got diagnosed with stage 4 mets to the bones. My doctor suggest mastectomy, a hormone blocker and bone builder. No chemo or radiation. His treatment doesn't seem very aggressive. I am terrified.

Asked by

anonymous

Stage 4 Patient about 1 year ago
Topics
  • anonymous
    Stage 3B Patient

    Wendy, God bless you. I am so sorry you are in stage 4, I've been battling stage 3b and praying we can stop it there. If you are not happy with the treatment plan, go seek a second opinion. I am so thankful that I took the time to do that, the doc who originally diagnosed me was so far off the mark its scary to think about what would have happened if I had went with him. He under diagnosed me and the extent of the spread. I have both lymph & vascular involvement, but so far it's not showing elsewhere, so I am scheduled for aggressive chemo in hopes of fending off stage 4. But, once you are in stage 4 it becomes more about maintaing quality of life and treating symptoms and slowing it down. Not having radiation in stage 4 does not strike me as odd, but the lack of chemo hits me as a something I would question. It may be that the statistics for your condition show chemo doesn't help. But, you must trust your doctor and if you don't find another one. At this time, I know you are reeling and have millions of questions, get a note pad and start writing them down as they occur, then take that with you to the doc. I come close to understanding how you feel, it's scary and surreal. I'm 48 and had no symptoms, issues or health problems related to the breast, no one in my family has had BC, but I am a past cancer survivor, but never imagined I would get BC. It's a shock. Take a deep breath, pray and start educating yourself on sites like this and other reputable sites. Reach out as often as you need, we are here, lots of beautiful Pink Ribbon Sisters, who are amazing. You are not alone. Prayers & Blessings, Penny

    about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Thank you for your reply. I really appreciate it.

      about 1 year ago Flag
    • Missing
      anonymous
      Stage 1 Patient

      Penny, how are you able to write such a long reply? It always tells me that 250 is the limit.

      about 1 year ago Flag
    • anonymous
      Stage 3B Patient

      When you post a question the limit is 256 characters, but answers and comments can be longer. Don't know why this is, it just is. A couple of times when I have a longer ? Then I add stuff to my story and ask our Pink Ribbon Sisters to read my...

      see more

      When you post a question the limit is 256 characters, but answers and comments can be longer. Don't know why this is, it just is. A couple of times when I have a longer ? Then I add stuff to my story and ask our Pink Ribbon Sisters to read my story to understand more. You can also post a ? And then say see my answer for the rest of the ?, and then add the rest of the ? To your answer. Hope this helps, the 256 limit can be frustrating. It helps to use Word and form your ? There and do a word count so you can modify until you get it under the limit, that's what I normally do. Prayers & Blessings, Penny

      about 1 year ago Flag
    • Comment
  • anonymous
    Learning About Breast Cancer

    Definitely second opinion, two sets of professionals looking at your results is great, I want to be with the most aggressive treatment plan, got lots left to do and see, let's fight this! I am also a new pink sister.

    about 1 year ago Comment Flag
  • anonymous
    Stage 3A Patient

    Hello Wendy, I never had health issues either. I'm 52 was diagnosed Sept 2012' had bilateral skin sparing mastectomy Jan 22 2013. Was suppose to start chemo and radiation, but after pet scan and bone scan, I had mets to bone (small) so treatment changed to Arimidex 1 pill daily and 1 shot of lupron to supress ovaries and Xgeva to strengthen bone. I started these last month. They will check cancer growth every 3 months. I also thought this treatment was not very aggressive. But with much research it is correct, I am ER PR ,her2 neg. Invasive Lobular carcinoma ,9 pos lymph nodes. Prayers Sherry M

    about 1 year ago Flag
    • anonymous
      Stage 3A Patient

      Sorry, I meant ER PR positive. Her2 negative

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Thank you so much for replying. I had my pet which picked up the bone mets, had a bone marrow biopsy friday, will have lumbar and thoracic spine and brain MRI next friday. Started onf armidex because Dr. had samples but he prescribed letrozole and...

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      Thank you so much for replying. I had my pet which picked up the bone mets, had a bone marrow biopsy friday, will have lumbar and thoracic spine and brain MRI next friday. Started onf armidex because Dr. had samples but he prescribed letrozole and I will pick that up today. It is supposed to be very similar to armidex. I will also get Xgeva monthly as well. It sounds like our situation is siimilar. I am ER PR pos invasive lobular cancer as well, don't know HER status.
      I will pray for you too.
      Are you okay now? Do you have any pain?

      about 1 year ago Flag
    • anonymous
      Stage 3A Patient

      I feel great, just had a bone biopsy last Thursday,it confirmed I had same cancer as original diagnosis, they did biopsy on collarbone. I really believe I need to change my diet to lots of veggies and fruits. Not many women on this site are stage...

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      I feel great, just had a bone biopsy last Thursday,it confirmed I had same cancer as original diagnosis, they did biopsy on collarbone. I really believe I need to change my diet to lots of veggies and fruits. Not many women on this site are stage 4. Please keep in touch. Sherry

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Yes, I've gone through my fridge, threw out anything with artificial preservatives, artificial colors or additives, have ordered nutrition for cancer books from amazon, discontinued white flour and white sugar, though I wasn't eating much of that...

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      Yes, I've gone through my fridge, threw out anything with artificial preservatives, artificial colors or additives, have ordered nutrition for cancer books from amazon, discontinued white flour and white sugar, though I wasn't eating much of that before. Having lots of fruit sinc I really like it. I feel good physically. My prognosis is 3-5 yrs and knowing the cause of my death ahead of time and having a potential expiration date is playing with my head. I guess the best approach is to enjoy what I have as much as possible.

      about 1 year ago Flag
    • anonymous
      Stage 3A Patient

      There are many women on the bcmets website that are stage 4 bone mets and are doing well after 9 years. Which gives me some encouragement. As long as our treatment keeps working we will do well. At least there are a few more to try if this stops...

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      There are many women on the bcmets website that are stage 4 bone mets and are doing well after 9 years. Which gives me some encouragement. As long as our treatment keeps working we will do well. At least there are a few more to try if this stops working. Diet and exercise are key.

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Hi SM, Just wanted to let you know I am thinking of you. Hope you are well and enjoying your life inspite of cancer. I have decided I do not want to spend another minute of my life unhappy or not enjoying everything I do. Knowing that my life...

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      Hi SM, Just wanted to let you know I am thinking of you. Hope you are well and enjoying your life inspite of cancer. I have decided I do not want to spend another minute of my life unhappy or not enjoying everything I do. Knowing that my life expectancy may be shorted has changed my perspective.

      about 1 year ago Flag
    • anonymous
      Stage 3A Patient

      Hi Wendy, just got this message. I'm doing good I go to my Dr tomorrow, it will be a little scary ,hope my bloodwork is ok ,and no need for scans. I will keep you posted. Sherry

      12 months ago Flag
    • Comment
  • anonymous
    Survivor since 2011

    I always say get second or maybe third opinion. You are going to spend a lot of time with this doctor find someone you can work with and that you trust.

    about 1 year ago Comment Flag
  • Missing
    anonymous
    Learning About Breast Cancer

    When they told me of 4 biopsy results the initial discussion was masectomy. I went to the surgeon who said I can take a clean wedge out and ten lymph nodes. We waited to make a final decision based on genetics. If it is going to come back in tissue the thinking is keep it in breast tissue and not other places.
    The brain MRI of course scared me and I'm post surgery thinking about those results to come.

    I too am healthy. Premenopausal. Will need the er and pr blockers and Her2 amplified . So maybe that last bit or the grade makes some different options available

    We will think of you often

    about 1 year ago Comment Flag
  • anonymous
    Learning About Breast Cancer

    You need to get a second opinion
    God bless

    about 1 year ago Comment Flag
  • Missing
    anonymous
    Stage 2A Patient

    Get a second and third opinion! It won't hurt u to do this! This sounds weird to me! Don't wait!!!

    about 1 year ago Comment Flag
  • anonymous
    Patient

    I agree with everyone who said to get a second opinion your treatment plan is probably right, but it does seem strange to not have chemo

    about 1 year ago Comment Flag
  • anonymous
    Stage 4 Patient

    Hello, I'm 31 and I am also bing staged as stage 4 tb,,,, I told my doctors that if it is indeed in my lungs to then I will not have mastectomy,, because its useless to go through that tragedy and put ur body in more schock that lowers ur immune system even more which fights the cancer,,,, if I had cancer elsewhere in my body,,, unfortunately in my case my docs are scattered 3-4 different docs 2 scans of my lungs and they can't say for sure if its cancer they see in my lungs or just spots from me smoking so long,, but u should seek other opinions don't just sit there and be a puppet and think their word is written in stone,, if u don't feel right about Domingo research it ,,, and research it with god first his spirit will help guide you and put your mind at ease,,, god bless you

    about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      I just met a man yesterday at a yard sale 15 years been having bone cancer and he has no chemo :)

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Thanks Tamara! I appreciate your comments and the info about the guy that has had bone cancer for 15 years. What treatment have you had?
      God bless you too. I see you are a mom : )

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      I am undergoing a harsh regimen ,, my regimen is 12 weeks of taxol/ herceptin ( which I done , then 4 cycles of FEC, then surgery , then harsh radian, followed by 18 mths of herceptin,, as hard headed as I am I'm sure I will change my regimen...

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      I am undergoing a harsh regimen ,, my regimen is 12 weeks of taxol/ herceptin ( which I done , then 4 cycles of FEC, then surgery , then harsh radian, followed by 18 mths of herceptin,, as hard headed as I am I'm sure I will change my regimen along the way lol,, the man I met with bone cancer said he's been through chemo and radiation with no success he is taking alternatives right now and still kicking,, I am also every day seeking god for healing and researching all the miraculous natural cures for foods etc,,, remember knowledge brings wisdom so don't worry bout what one doctor thinks ,,, u can beat this prayers to u my friend

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      I guess we don't have to figure all of it out before hand. I hope you respond well to your treatment. One day at a time. Do you feel pretty good about your doctors and the facilities you go to?

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Tamara,
      Just wanted you to know that I am thinking of you, sending you healing thoughts and praying for you. Hope you are doing well with your treatments.

      about 1 year ago Flag
    • Comment
  • anonymous
    Learning About Breast Cancer

    Yes do get another opinion... Starting with have another lab look at the pathology report. I am a Kaiser patient and they sent my pathology slides to Stanford to get a second opinion. This week I am going to request a full second opinion on treatment options from Stanford. My Kaiser team is excellent, but the cancer and my drug reactions seem to messing with the treatment plan- so I want another pair of eyes on best options.

    about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Way to go Mimi :)

      about 1 year ago Flag
    • anonymous
      Stage 4 Patient

      Hope you are getting the information you need to feel good about your decisions and plan.

      about 1 year ago Flag
    • anonymous
      Learning About Breast Cancer

      Mimi,

      George Sledge is now at Stanford from IU/Mel & Bren Simon Cancer Center in Indiana. He is top in the onco field, internationally known, & former president of ASCO. He was my go to guy & I ran research studies with that group. Find him!

      about 1 year ago Flag
    • Comment

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