Asked by anonymous
Stage 1 Patient
Dorothy, did you have chemo too? What was your grade? Thank you :)
Comment 0
Hi I had stage 1 went through radiation had
30 treatments wasent that bad till alittle more than half way then the last 5 was the boost I did burn and then the pealing all in all it wasn't to bad for me
Asked by anonymous
Learning About Breast Cancer
Radiation treats the breast tissue; chemo treats the whole body. Breast cancer.org has lots of good info
1 comment 2
Hi Terri, I think you should get a list of questions together for surgeon and oncologist. I had dcis, stage 1 n went they did the surgery, they found a very small tumor that was invasive ductal carcinoma. Because I was her 2 positive, I needed chemo n herceptin. There are a lot of variables here...
Hi Terri, I think you should get a list of questions together for surgeon and oncologist. I had dcis, stage 1 n went they did the surgery, they found a very small tumor that was invasive ductal carcinoma. Because I was her 2 positive, I needed chemo n herceptin. There are a lot of variables here and you need a lot more information. Get the biopsy notes, are you her 2 or estrogen/ pr positive? I really felt I needed a second opinion, which I got before proceeding with treatment. Keep us posted
Asked by anonymous
Learning About Breast Cancerthe hard answer is yes. I haven't heard of anyone that has gotten around what is the hardest part of treatment. I don't think anyone disagree with me. You are choosing a life saving treatment but the side effects are not nice but doable. The week before I stated chemo I cut my hair really short....
the hard answer is yes. I haven't heard of anyone that has gotten around what is the hardest part of treatment. I don't think anyone disagree with me. You are choosing a life saving treatment but the side effects are not nice but doable. The week before I stated chemo I cut my hair really short. I thought it would make me feel better. I also went and got a wig (my insurance paid for it with a prescription) before my first chemo. My hair started coming out about two weeks after my first chemo. I think it is a little different for everyone. It started coming out in clumps. I went to my hairdresser, after hours, she shaved and cried, I cried, my husband cried. Then she put the wig on trimmed it up and it wasn't to bad. We dried our eyes, and and my husband took me for a drink. Over that drink he told me I was beautiful and we can beat this. YOU can beat this!!! I am sorry you have to join our club but we are all here anytime you need a pat on the back.
Terri,
It is difficult to say much because there are so many variables. Without any more information, such as type, stage, size of tumor, it is difficult to say what you are facing. Again, if you have chemo. depending on the type, you will lose your hair. It will start falling out at about...
Terri,
It is difficult to say much because there are so many variables. Without any more information, such as type, stage, size of tumor, it is difficult to say what you are facing. Again, if you have chemo. depending on the type, you will lose your hair. It will start falling out at about the two week point. Breast cancer is treated in a variety of ways... with surgery, either a lumpectomy, or a mastectomy, then with or without radiation, chemotherapy and depending if the tumor is estrogen/progenterone positive, there is a possibility of a hormone blocking drug you take for at least 5 years. (this does not affect hair growth). Right now a woman is usually in total shock. There is still much to be learned about your individual cancer cells. Every woman's treatment is different because it will be set up to her particular cell type of breast cancer. So when women write and ask what type of treatment they are going to have, we don't really know. Personally, I think this is the most frightening time because you are stuck for a while between knowing you have breast cancer and finding out what your treatment will be. You will probably be having a bunch of tests, such as MRI, PET, CT, Muga, Bone Scan's, plus lots of blood drawn. Your breast cancer sounds like an early stage and THAT is something to celebrate. Whatever your treatment ends up being.... you WILL make it. We have all been on the same path.... just different branches here and there. We are sorry you have joined --the club-- it's one we don't care to add members to. Please keep in touch with us here, we are very glad to help in any way we can. Hang in there and take care, you will get through this. Sharon
Asked by anonymous
Learning About Breast CancerThis is such a personal decision and you will make the right one for yourself. I know when I was diagnosed with Stage 1 cancer, my first feelings were to have a mastectomy because I just wanted the cancer out! I never wanted to go through this again, but my doctor was a big help in making this...
This is such a personal decision and you will make the right one for yourself. I know when I was diagnosed with Stage 1 cancer, my first feelings were to have a mastectomy because I just wanted the cancer out! I never wanted to go through this again, but my doctor was a big help in making this decision with me. We had long talks about lumpectomy vs mastectomy. This was one of the hardest decisions of all in the whole cancer process, but I know I made the right one for myself. The reasons I chose lumpectomy had a lot to do with the studies done on women and their recurrence rate after lumpectomy vs mastectomy. With a lumpectomy, I knew radiation was also going to be part of my treatment. Now, 2 years later, I am very content with the choices I made. Hang in there Carla and take your time with this.
I agree with the ladies. Sometimes a second opinion helps. Don't rush into your decision, even though we all know the feeling of "get it out". I think alot of it depends on family history, what type your tumor is, the size of your tumor, etc. Do you have a nurse navigator helping you? The studies...
I agree with the ladies. Sometimes a second opinion helps. Don't rush into your decision, even though we all know the feeling of "get it out". I think alot of it depends on family history, what type your tumor is, the size of your tumor, etc. Do you have a nurse navigator helping you? The studies are showing the chances of cancer reoccuring are about the same whether or not you have a lumpectomy or mastectomy. You will make the right decision for you, and follow your gut instinct. We are all here for you.
Asked by anonymous
Stage 1 Patient
Dont concern on this ridiculous we are not with expire date go live your life
Comment 1Parvaneh,
Sally is SOOOO correct. Doctor's have to work off of mathmatical models.... percentages. They can be way too analytical at times, but they are scientists and that's how they talk. We are LIVING, BREATHING, human's with our own special set of genetics. When I was going through...
Parvaneh,
Sally is SOOOO correct. Doctor's have to work off of mathmatical models.... percentages. They can be way too analytical at times, but they are scientists and that's how they talk. We are LIVING, BREATHING, human's with our own special set of genetics. When I was going through treatment, the last thing on my mind was percentages because I was going to live a wonderful life. I am still here and so are all of us on this board.
I think you have a fabulous chance of growing to be really,really, old. You just march yourself right through your treatment and fight like a girl. You WILL be OK!
Take care, Sharon
Asked by anonymous
Learning About Breast CancerGabby, how loving of you to be so concerned about your grandma. Although there are many factors that figure into a breast cancer diagnosis, it would be unusual for a stage 1
breast cancer to be something to be highly concerned about. If her doctor's are not ringing their hands with worry, I...
Gabby, how loving of you to be so concerned about your grandma. Although there are many factors that figure into a breast cancer diagnosis, it would be unusual for a stage 1
breast cancer to be something to be highly concerned about. If her doctor's are not ringing their hands with worry, I would follow their lead. They see breast cancer all the time, and a stage 1 with no mention of aggressive cells, you need to follow their lead and relax a bit. Your grandma will get the care she needs to cure this. This is a very early stage breast cancer that was found in plenty of time so you will have your grandma with you for a long, long, time. I don't know what type of breast cancer this is or what course of treatment will be followed but I know she will have the pleasure of her grandaughter with her along the way. Please try not to worry. Breast cancer treatment has advanced so much, and so many of us have been saved because of it... especially the women whose disease was diagnosed at Stage 1. Big hugs to you, your grandma must be a very special lady and is lucky to have you. Take care, Sharon
You shouldn't be afraid. The good thing the cancer was found on time and your grandmother well be fine; with a positive attitude and the family support she will be alright. I am going thru chemo and then radiation and as long as she continues with her treatments she will be fine and will come...
You shouldn't be afraid. The good thing the cancer was found on time and your grandmother well be fine; with a positive attitude and the family support she will be alright. I am going thru chemo and then radiation and as long as she continues with her treatments she will be fine and will come out positively. Best wishes and best of luck to your grandmother and your family; always be positive and that will help her come out of this situation faster.
Asked by anonymous
Learning About Breast CancerCarla, you have SO MUCH going in your favor. This sounds like its an early stage, and it is hormone positive which means you have much more of a chance to starve the little beastie's with taking a hormone blocking drug. I was a 2-B invasive ductal carcinoma, with a positive node, it was also...
Carla, you have SO MUCH going in your favor. This sounds like its an early stage, and it is hormone positive which means you have much more of a chance to starve the little beastie's with taking a hormone blocking drug. I was a 2-B invasive ductal carcinoma, with a positive node, it was also hormone positive. I chose to have a mastectomy just because I didn't want to take the chance of having the surgery and the possibility of not have clean margins. THey also said if I had a mastectomy. I would not have to come back for a multitude of radiation treatments. We live on an island and have to take a ferry..... daily for the treatments. So those were my two reasons for the choice of the mastectomy. I had 4 round of AC chemo and that was it for my treatment. We all make our choices for individual reasons. We ARE so lucky to have these choices to make! You need to get down to business and get it done. The quicker you do, the faster you can put this behind you and get on with your life. Breast cancer has already taken up enough of your time. You put on those big-girl-warrior-panties and march right through taking your wonderful life back for youself and for your family. Nobody wants to see you going through this but you can give them a fabulous picture of strength as you are kick-breast cancer's booty! Hang in there Carla, you GO GIRL! Take care, Sharon
Carla, this is a question that comes up at various times during the process of treatment. I have always said there are statistics and then there are people. Statistics is a cold rigid bunch of numbers that justifies the existence of statisticians, computer programs, etc. You are human, a...
Carla, this is a question that comes up at various times during the process of treatment. I have always said there are statistics and then there are people. Statistics is a cold rigid bunch of numbers that justifies the existence of statisticians, computer programs, etc. You are human, a marvelous collection of living cells who had a mind, feelings, family, and everything to live for. Statistics take into consideration type, stage, etc. when they plug something like that into a computer and come up with a number. You are an individual... you are unique in your diagnosis, do not waste time or put any energy into statistics. You go into your treatment with a positive attitude, march through it with courage, and the "get-er'-done" mind set. You will be ok! It isn't a trip to Disneyland but the vast majority of us make the journey and go on to share our experience with others. Do NOT give these negative thoughts any power.... you are not a statistic. Some doctor's may think they have a line to God but they don't. Nobody knows how long they have to live and a statistical number is just a wild guess! Hang in there and take care, Sharon
Asked by anonymous
Learning About Breast CancerI think a decision is best made with the facts from the pathology report and your oncologist. The treatments are now so tailor-made for each woman and no longer the "shot-gun" approach. The treatment plans could be completely different from one woman to another depending on the individual...
I think a decision is best made with the facts from the pathology report and your oncologist. The treatments are now so tailor-made for each woman and no longer the "shot-gun" approach. The treatment plans could be completely different from one woman to another depending on the individual findings... even if the diagnosis may seem the same on the surface. Did you have an Onco-Test DX? This is a test that can predict the chances of reoccurance in early stage breast cancer. It looks at individual cells and can give you a look into the future. It helps map out a treatment plan for you. It usually take a bit longer for that test result to come back. If you don't know if you had that test, ask your doctor. You are a good candidate for this test. Good luck to you and healing hugs! Sharon
I don't know enough to answer your question but I have to say Hi since we are the same age. I will be 72 in July. I was diagnosed on Valentines Day with ER/PR- HER2 . I recently started the TCH Protocol. I hope you get the answers you need.
Comment 0
Asked by anonymous
Learning About Breast CancerWe all react different for me the worst was the drain and I can't sleep on my back. I also had to do a 2nd surgery to clean up margin later I found out that happens a lot.
1 comment 0
You know what is so wonderful about these responses? No one is saying you should feel this or that. No one is extrapolating their individual experiences to a universal. They are all acknowledging there can a huge variety of responses.
So - like everyone else I am not saying my experience will...
You know what is so wonderful about these responses? No one is saying you should feel this or that. No one is extrapolating their individual experiences to a universal. They are all acknowledging there can a huge variety of responses.
So - like everyone else I am not saying my experience will be yours. One thing I learned myself and had reinforced on this site is we are often not warned about seromas developing post operatively - seromas are fluid filled sacs in or around the scar. Around 40% of women get them, so they are not rare. There are threads on seromas on this site so I won't go into more detail.
The pain levels can vary enormously. I would recommend you make sure you have effective pain meds already prescribed for you and on hand so you do not find yourself in pain and without them after discharge.
The lumpectomy size, location,number of stitches etc varies enormously. Mine is an inner upper quadrant, so my scar is visible with even semi-low cut top. but I actually like scars, and find them interesting, so this does not have a negative effect on me as it would on someone horrified by scars.
The operation itself was my first as well as first stay in a hospital, so I was very frightened. I had a bad reaction to coming out of the anaesthetic - there is a family history of that so I expected it would happen.
I paid huge attention to avoiding acquiring an infection while I was in hospital as well as once I got out. I was scrupulous about scrubbing myself from head to tow with the anti bacterial wash our hospitals give us to use the night before and morning of surgery. I wore pure cotton gloves in hospital so I was not touching germ filled surfaces and then my face or wound. I changed gloves often. I used anti bacterial hand wash many times a day after discharge as well. I bathed using Phisohex while my wound was healing. I kept well away from small children, even though it would have been lovely not to. I avoided anyone ill with colds etc so I was not sneezed or had to shake hands or kiss anyone carrying any germs. I followed the surgeons instructions to the letter for wound dressings. He used a dressing product that meant I could shower etc normally and it dropped off naturally when it was ready. I let it and did not pull at it. When I was briefly readmitted to hospital because of pain, I did not allow the Dr to remove the dressings early to "have a look" . I told him I had no fever, no temperature, no clinical indications of infection, I was back in hospital because they discharged me after removing 20% of my breast without giving me any pain meds to take home, I wanted some pain meds to rectify their error, and I definitely was not going to disobey y surgeons instructions to not touch the dressing till it fell off naturally excepting if I had an infection.
I found I could not pick up and carry things I used to be able to carry leaning on my wound area. Even a couple of years later, I have to be very careful. Just this week a 3 year old climbed up next to me and bashed her head into my scar. It was very painful. I try to be careful about squirming children or animals, but I still get a painful whack.
For about a year after the lumpectomy I had to avoid breast jiggle. I always used well supported bras anyway, but if I was in a car going over a speed hump for example, I would use my hand to hold my affected breast to avoid a painful jiggle. Years later I still don't do anything that cause my affected breast to jiggle - it tugs painfully at the scar tissue. I still get a weird tightness and burning sensation in the site of my sentinel node biopsy under my armpit. Many women I talk to say that is worse than the lumpectomy.
Within days of my lumpectomy I returned to yoga classes. I could not lay on my front or do some of the poses. I didn't care. The reason was I did what I could was I wanted to try and stretch the underarm and breast scars while they were fresh and still soft, as much as I could, because I knew if I let them heal in a tight ball, they would remain tight forever. So as much as I did not want to do arm stretches etc, I did as much as I could. A formal independent test by a physio showed I retained more than 95% function in my affected arm compared to my non-affected arm, so I think the early stretching really helped.
I did not have any body image crisis as I actually like my scars. Some women are very different and feel damaged or mutilated.
The worst part for me was the Nuclear Medicine staff on the morning of my surgery who gave me an radiotracer injection into my breast under the general nipple area. The technician lied to me and told me if was the same pain level as a local anaesthetic and claimed I did not need any pain relief. The pain was excrusciating - I felt like it took the top of my head off. Every muscle in my body spasmed. I involuntarily urinated and defecated a little in my underwear. Tears poured out of my eyes automatically without any intention to cry. I needed three months of five times a week phsyio on the shoulder closest to the injection site as the contractions from the painful injection was so bad, it locked the shoulder in a weird position. I then had to sit around for 6 hours waiting for surgery essentially in shock from this.
My tip - ask if you are having the radiotracer injection to light up the sentinel node before surgery and if you are INSIST on being given adequate pain relief such as EMLA cream one hour before, lidocaine injection first [I can tolerate a lidocaine injection no problems but the radiotracer is a million times worse] and/or the green tube with pain relieving chemicals you can suck on. I had to laugh cynically months later when I found out the university animal ethics research committee requires female dogs who are given this same radiotracer injection have solid pain relief first, yet our Protocols for Nuclear Technicians who do the same thing to humans do not. The reason it is mandatory for dogs by the way is because the pain from the radiotracer injection into the breast is considered is classified as cruel and torture when done to a dog without anesthetic.
Asked by anonymous
Learning About Breast Cancer
I am triple neg too. Stage 2 grade 3, 3.5 cm tumor. My treatment plan is neoadjuvant chemo (chemo before surgery to shrink tumor) then surgery and then radiation. I'm half way through chemo now (TAC). I'm 38. The whole thing has been scary and overwhelming but I look at it as an...
I am triple neg too. Stage 2 grade 3, 3.5 cm tumor. My treatment plan is neoadjuvant chemo (chemo before surgery to shrink tumor) then surgery and then radiation. I'm half way through chemo now (TAC). I'm 38. The whole thing has been scary and overwhelming but I look at it as an inconvenience, not a death sentence. I'll get through this, and so will you!!! This is a great resource for support and any questions that arise... We'll help in any way we can. Some of the best advise I've gotten is to stay hydrated and to stay positive! :) Julie
You have earned the right to be confused, scared and overwhelmed. Please take a few deep breaths. Inhale, exhale. It seems like forever to get the diagnosis and then everything piles up and happens all at once. You are going through similar to the treatment plan I experienced. Just take one...
You have earned the right to be confused, scared and overwhelmed. Please take a few deep breaths. Inhale, exhale. It seems like forever to get the diagnosis and then everything piles up and happens all at once. You are going through similar to the treatment plan I experienced. Just take one day at a time. This is the only way you can comprehend it all. Please always take someone with you if you can. It always helps to have an extra set of ears. I went and got fitted for a wig before my hair fell out and shaved my head before also. I felt more in control that way. As you will see there are many ladies on here that will become so much support for you. I found a lot of comfort and advice from my Ono nurses. If I had a question I would run it by them. If they did not feel comf answering it they would go get the doc to take care of it. Try to take each day as slowly as you can. Keep posting and good luck.
Looking for another topic? Use the search box in the top right.
Beyond The Shock is a comprehensive online guide to understanding breast cancer.
It is a resource for women who have been diagnosed with breast cancer, a place for loved ones to gain a better understanding of the disease, and a tool for doctors to share information.
Beyond The Shock is a collaborative breast cancer guide created by the National Breast Cancer Foundation, Inc. (NBCF) with the support of the finest medical experts, doctors, and researchers in the world. NBCF utilized ground-breaking technology and the resources of the global medical community to create an accessible platform for understanding a diagnosis of breast cancer.
Terms of Service
|
Privacy Policy
|
Sitemap
|
Medical Disclaimer